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New group in Inspire: The National Body Challenge

Brian
  • By Brian · New reply yesterday at 10:50 am
  • Journal · 12 replies
  • I am pleased to announce that today we added a new group to Inspire: The National Body Challenge. nationalbodychallenge We created this group in partnership with Discovery Health. The group focuses on ...

Happy New Year

ROSEPETAL
  • By ROSEPETAL · New reply January 2, 2009
  • Journal · 2 replies
  • Dear friends, I wish all of you a very happy new yea. May the year 2009 brings hope, happiness and peace in our lives! Love to all! Rosepetal, India ...

MAKE WILSON DISEASE AS DIABETES TYPE 2

NARENDRA_LIMAYE
  • By NARENDRA_LIMAYE · New reply January 1, 2009
  • Journal · 3 replies
  • IF DIAGNOSED EARLIER AND TREATED WITH ZINC THERAPY CAN THIS DISEASE BE EASILY TREATABLE AND BROUGHT WITHIN CONTROL LIKE DIABETES 2AND NOT TO BE FEARED AS FATAL OR PERMANENTLY DISABLING FOR LIFE? I was ...

facebook group

sismeliss
  • By sismeliss · New reply December 22, 2008
  • Discussion in Personal stories · 2 replies
  • Hi all, Just wanted to let you know that a friend of mine started a wilson's group on facebook. Maybe it could start a little more awareness for it and organ donation and such. I told her I would spread ...

Waiting for an official diagnosis

Sili
  • By Sili · New reply December 22, 2008
  • Discussion in Getting a diagnosis · 8 replies
  • Last Friday I was called into my doctor's office to hear that my ceruloplasmin level was low and my AST/LST levels were high. My doctor mentioned that it could be Wilson's and sent me in for a sonogram ...

Patches on my hands and legs

ROSEPETAL
  • By ROSEPETAL · New reply December 22, 2008
  • Discussion in Treatment options · 13 replies
  • Hi there I am a WD patient. I would like to know that is there some cure for the black patches which WD patients usually have on their body. I discussed this with my Doc but she said that it will be better ...

doc told me the news today

Margus
  • By Margus · New reply December 21, 2008
  • Discussion in Newly diagnosed · 27 replies
  • Hi! My name is Margus. I´m 26 year old guy from Estonia. I have a fiancee and no kids yet. So looks like I have it. I found out the lab results for the blood and the 24h urine test. Urine test showed ...

INSANE itching

junebug23
  • By junebug23 · Posted December 18, 2008
  • Discussion in Pregnancy · 0 replies
  • Hi everyone! I thought I'd post this to see if anyone else has had experience with this as I am really suffering! I have started itching horribly all over my body and especially on my calves. I remember ...

Why are we here?

Brian
  • By Brian · New reply December 16, 2008
  • Journal · 136 replies
  • When we started this community, each of us faced important health issues in our lives. Some of us have family members with medical conditions. Many of us have medical conditions of our own. All of us ...

ughh

15andconfused
  • By 15andconfused · New reply December 15, 2008
  • Journal · 3 replies
  • hi im 15 was pregnant and had an abortion help im hurtn n hav no1 to tlk to tht undrstands i need sum1 ne1 help ...

hi

15andconfused
  • By 15andconfused · Posted December 6, 2008
  • Journal · 0 replies
  • if u hav a myspace and want to add me n tlk to me thru ther my myspace is myspace.com/ilytjb im jus rele lookn for sum1 to help me get thru this tuff time ...

I am pregnant!!! yaya!

McVeggie
  • By McVeggie · New reply December 5, 2008
  • Discussion in Pregnancy · 27 replies
  • hiya all, I took two over counter pregnancy test kit myself the first one was unclear but show possitive. Second one I took show a more clear result of positive. Yesterday, went to gyn positive as well ...

Still Pregnant

junebug23
  • By junebug23 · New reply December 2, 2008
  • Discussion in Pregnancy · 12 replies
  • Hi everyone! Just giving an update: I am now 14 weeks and 5 days pregnant. Since getting pregnant I have found out a lot about pregnancy and WD that I didn't know. I guess I was lucky to conceive as WD ...

Medical help required

Jayalakshmi
  • By Jayalakshmi · New reply December 2, 2008
  • Discussion in Help desk · 1 reply
  • I am a widow aged 70. My son, who is 46 had been diagnosed with WD when he was 13yrs. I lost my husband in 2002 and my elder son(who was supporting me with the treatment) met with a fatal accident last ...

Support your group and raise awareness with badges

Walter
  • By Walter · New reply December 1, 2008
  • Journal · 35 replies
  • Hi everyone. We added a new feature today that you can use to support your groups and the organizations that sponsor them, and get the word out about the causes that are important to you. If you visit ...

REAL HOPE - and a Miracle - PLEASE READ

junebug23
  • By junebug23 · New reply November 29, 2008
  • Discussion in Personal stories · 1 reply
  • I am 32 years old and have been diagnosed with Wilson's since I was 15. I was diagnosed after a liver biopsy during hospitilization from acute liver failure. I was treated with Penicillamine and responded ...

Does this sound like WD or just copper overload?

leanguy
  • By leanguy · New reply November 28, 2008
  • Discussion in Getting a diagnosis · 3 replies
  • I'm a 34yo male in otherwise good health. Over the past year I've developed some neurological symptoms like insomnia, anxiety, mild tremor, mild tingling extremeties. I noticed the faucet I've been drinking ...

Parents Group for newly dx'd family

ctottenham
  • By ctottenham · New reply November 28, 2008
  • Journal · 6 replies
  • Hi; I am e-mailing for a friend who is still in Boston Children's. Her daughter just got the dx subsequent to a fair amount of liver failure. My son also has a very rare chronic illness and 4 years ago ...

New feature: video!

Brian
  • By Brian · New reply November 23, 2008
  • Journal · 24 replies
  • I am pleased to announce that we have updated Inspire to support video. You can now share a video of yourself, videos that you find inspirational or informative, and more. I've included one of myself ...

transplant

pedsrn9999
  • By pedsrn9999 · New reply November 22, 2008
  • Journal · 12 replies
  • Well, after two months of trying everything to save Dimitri's liver it appears we have lost the race. He is decompensating quickly and has been placed on the transplant list. Hopefully it will not be ...

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The Wilson's Disease Association Support Community connects patients, families, friends and caregivers for support and inspiration. The Wilson's Disease Association Support Community is sponsored by the Wilson's Disease Association in partnership with Inspire.