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Does this sound like WD or just copper overload?

leanguy
  • By leanguy · New reply yesterday at 9:55 pm
  • Discussion in Getting a diagnosis · 1 reply
  • I'm a 34yo male in otherwise good health. Over the past year I've developed some neurological symptoms like insomnia, anxiety, mild tremor, mild tingling extremeties. I noticed the faucet I've been drinking ...

New feature: video!

Brian
  • By Brian · New reply yesterday at 10:36 am
  • Journal · 19 replies
  • I am pleased to announce that we have updated Inspire to support video. You can now share a video of yourself, videos that you find inspirational or informative, and more. I've included one of myself ...

Hello and hugs to all:

jas
  • By jas · New reply yesterday at 8:22 am
  • Journal · 2 replies
  • Hello to all who have been so kind and supportive. I recently wrote and told you all of my diagnosis of Wilsons which really scared me. But for some reason, my copper fell about 50 points in just 7 days ...

doc told me the news today

Margus
  • By Margus · New reply November 18, 2008
  • Discussion in Newly diagnosed · 11 replies
  • Hi! My name is Margus. I�m 26 year old guy from Estonia. I have a fiancee and no kids yet. So looks like I have it. I found out the lab results for the blood and the 24h urine test. Urine test showed ...

Why are we here?

Brian
  • By Brian · New reply November 16, 2008
  • Journal · 124 replies
  • When we started this community, each of us faced important health issues in our lives. Some of us have family members with medical conditions. Many of us have medical conditions of our own. All of us ...

Affordable Medical Insurance?

alysa88
  • By alysa88 · New reply November 15, 2008
  • Discussion in Help desk · 3 replies
  • I'm almost 20 years old and my boyfriend and I are seriously considering getting married next summer. The only thing that is really holding me back right now is losing the insurance I have for my medical ...

new to group, info please

jas
  • By jas · New reply November 13, 2008
  • Journal · 6 replies
  • Hello to all: I was diagnosed with WD last week and I'm so depressed. I also have severe gastro paresis and have a pacemaker implanted to work my stomach that has no peristolic movement. My question is ...

Has any one tried homeopathy for wilson's disease?

GH
  • By GH · New reply November 12, 2008
  • Discussion in Treatment options · 20 replies
  • Has anybody ever tried homeopathy for cure of wilson's disease? What are results ...

transplant

pedsrn9999
  • By pedsrn9999 · New reply November 9, 2008
  • Journal · 11 replies
  • Well, after two months of trying everything to save Dimitri's liver it appears we have lost the race. He is decompensating quickly and has been placed on the transplant list. Hopefully it will not be ...

Parents Group for newly dx'd family

ctottenham
  • By ctottenham · New reply November 8, 2008
  • Journal · 5 replies
  • Hi; I am e-mailing for a friend who is still in Boston Children's. Her daughter just got the dx subsequent to a fair amount of liver failure. My son also has a very rare chronic illness and 4 years ago ...

LIVER BIOPSIES-Placed in Formalin-Does it damage sample??

JACKOSPADE
  • By JACKOSPADE · New reply November 5, 2008
  • Discussion in Getting a diagnosis · 2 replies
  • First, I want to say a VERY BIG THANK YOU! to Eva Roberts & DR. Michael Schilsky for your "Diagnosis & Treatment of Wilson's Disease" AASLD Practice Guidelines. It has answered so many questions for me ...

Just started losing balance and REALLY weak!

ronen
  • By ronen · New reply October 29, 2008
  • Discussion in Newly diagnosed · 9 replies
  • Hi Everyone! First off, I want to say just how appreciative I am for whoever came up with this website and all the supporters who are here answering questions for all of us newly diagnosed and scared ...

Waiting for KF test, Wilson's likely

Neven
  • By Neven · New reply October 23, 2008
  • Discussion in Newly diagnosed · 21 replies
  • Hi everyone, I don't believe I qualify as a newly diagnosed member yet, but I thought I'd post here anyway. Here's my story: When I was 23, I started a vegetarian diet which soon turned pescatarian, i.e ...

Does anybody have depression and mood swings?

minmyo
  • By minmyo · New reply October 23, 2008
  • Discussion in Depression · 9 replies
  • I was diagnosed in 1994. I used to take D-penicillamine and have been taking Galzin for 3 years. I had mostly hepatic symptoms. I've never got evaluated for psychiatric symptoms. I just think my depression ...

Going to my first Hepatology appointment tomorrow

ronen
  • By ronen · New reply October 21, 2008
  • Discussion in Newly diagnosed · 2 replies
  • Thanks again for everyone who responded to my first posting! :) It meant a lot. Tomorrow I'm going to my first Liver Doc appointment, I'm really nervous and feel like just telling him to give me those ...

Female WD Patients

mgraper1
  • By mgraper1 · New reply October 6, 2008
  • Discussion in Pregnancy · 12 replies
  • As a female WD patient, if you have had successful pregnancies and subsequent births, please post to offer encouragement to those female WD patients who are wondering if it can happen for them ...

Miraculously Pregnant!! And happier than ever

junebug23
  • By junebug23 · New reply October 6, 2008
  • Discussion in Pregnancy · 3 replies
  • I am 7 weeks pregnant and it is a miracle. It's a good story - it's on my profile. Anyway I am on Zinc maintenance and have weaned off of the 20 medications I was on for neurological complications. I ...

Sick of it

alysa88
  • By alysa88 · New reply October 5, 2008
  • Discussion in Teen chat · 22 replies
  • Has anyone gotten sick of taking their meds? I need help..I was diagnosed with WD when I was 13 years old and I am now 19.. When I was first diagnosed I had alot of the neurologic systems i.e. tremors ...

REAL HOPE - and a Miracle - PLEASE READ

junebug23
  • By junebug23 · Posted October 5, 2008
  • Discussion in Personal stories · 0 replies
  • I am 32 years old and have been diagnosed with Wilson's since I was 15. I was diagnosed after a liver biopsy during hospitilization from acute liver failure. I was treated with Penicillamine and responded ...

Dr. in Los angeles?

minmyo
  • By minmyo · New reply September 27, 2008
  • Discussion in Finding a doctor · 6 replies
  • I live in Santa Barbara. I am looking for a doctor who has treated some Wilson's disease patient. I was on a trial with Dr. Brewer but Michigan is a bit too far... Could you recommend anybody around here ...

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The Wilson's Disease Association Support Community connects patients, families, friends and caregivers for support and inspiration. The Wilson's Disease Association Support Community is sponsored by the Wilson's Disease Association in partnership with Inspire.